I’d Like to Buy a Vowel: E

EoE1Another flipping abbreviation to add to the list. This time it’s not mine, but my sons. EoE, or eosinophilic esophagitisEoE. I can’t even pronounce that first word so this time I’ll abbreviate. We did his endoscopy yesterday and the doctor came in and spoke to me before my son had even returned to the room. I’m sure this is standard procedure so that my incredibly goofy, incredibly high son’s behavior didn’t interfere with my ability to take in the information that was being given to me. He gave me the bit of good news first. “Your son’s stomach is fine,” he said as he was showing me pictures of the inside of his esophagus and stomach which looked vaguely like something X-rated and uncomfortable to discuss about my child, much less with this old man. He then moved on to the other images which were heavily covered with white specks or clusters. He shows me a picture of a normal esophagus and says, “you see these ridges, these are supposed to be there.” “You see your sons and how smooth it looks and inflamed, that’s not what it should look like and this is consistent with EoE and his is moderately severe”. His esophagus looked exactly like a donut with white powder to me. He tells me that he took several biopsies and we are going to wait until the results came back before we treat him. The treatment would be budesonide he informs.

He’s now used so many big words and so much information that I’m just nodding and taking it in. I get home and look this medicine up and see that it’s basically the same as what he already takes for asthma. How is this going to help? My child still doesn’t fully grasp how serious this can be for him and I’m still trying to figure out how to express it to him without scaring him. I want him to have a normal life. This is starting to become overly complicated. I’ve already managed his life to be as normal as I can with his asthma and allergies. Now he has a sick mother who rarely feels like doing much and she’s extra stressed because of her own and her son’s disease. I know I’ll get through it. I’m tough like that. But why do I have to do it all at one time?

Among other things, I have a nagging pain in my left leg. I also have a bruise I don’t remember the cause of. I’m worried it could be something serious like a clot, but I also worry I’m overreacting about it or if I’ve just become accustomed to expecting the worst. That’s all for today. The car rider line is moving…

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