Winter is Over

I haven’t been writing much lately. I have found myself constantly trying to venture into new areas in an effort to continue to be able to work from home so I can afford my insurance and stay my version of healthy.

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I have been working for a company for going on two years and business has all but came to a stand still. Because of this, I am not getting over 20 hours a week. This takes a good toll on your bank account. Not only that, but stress levels are through the roof.

Stress causes disease to grab hold of you and beat you like a drum. Not only that, but the rain season began and that alone can cause pain levels to be astronomical.

For those of you who follow my blog, you know I am a TV fanatic. I can live without a lot of things in life, but my TV is NOT one of them. When pain and stress take hold of me I find myself getting completely immersed in TV. I have found a lot of good shows to binge watch. Two of the latest: Outlander and Peaky Blinders.

Let me tell you, these shows have blown my mind. They are so creative and they really pull you into their world. The stories are very well written and the characters and the actors that play them will knock your socks off. If you haven’t watched either of these shows, do yourself a huge favor and get busy doing so. Outlander is set to come on Netflix May 27th and Peaky Blinders is already there. You can thank me later for these recommendations.

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Last night, one of my other favorites, Game of Thrones, came to a final end. There are so many people mad about the entire last season and the writing and I for one, don’t understand. I mean, this is a TV show and the one thing that has kept people so immersed in the show is the element of surprise. Sure, I think Jon deserved a higher purpose but he got what he wanted. He saved the world and got little to no recognition for it. He’s never wanted that for himself and if you followed the show you know this.

Still, the shows ending leaves a large gap for viewers to fill. There are said to be spinoffs and I hope they aren’t as long awaited as the final season was. I can’t wait to see what they have in store.

Changing subjects, I have also been back to doing surveys to fill the time and make a few extra dollars. One new one I have found that I didn’t previously use is Survey Junkie. It really is self explainatory but you basically find surveys you want to take and earn money upon completion. You can choose to get paid via PayPal so it is a win, win. Please take a look if this interest you and don’t forget to use my link when you sign up.

I am off to do some more job searchin’. I hope to use more of my spare time to write more. I am also in the process of opening my own store. It is a lot easier said than done and will always be a work in progress but please take a peek and let me know if you have any suggestions as I really do need help getting the word out in the cheapest way possible ūüôā The website is dontabbreviateme.net.

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Hope you guys have a great summer! Stay Cool and most of all BE WELL!

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Trapped By Illness

cbcb67c91ceb2ff56bdd60601c9eaf64Have you ever been somewhere that you really really didn’t want to be?¬† All you can think about is the moment you get to leave. The feeling of slipping back into your pajamas when you get home and hitting the bed like a ton of bricks. The random thoughts that run through your head –¬† this time tomorrow, I won’t be here. In just three more hours this will be over. This is just a few hours out of my entire life, I can do this.

 

Now, imagine that feeling for the rest of your life. Only you aren’t somewhere you don’t want to be. You are just trapped inside your own body which is breaking down at every single turn you make. You can’t even find a comfortable position to lay and exist in bed. It is miserable.

 


imagesNot only are you overtaken by pain from doing merely nothing besides waking up, but you know all of the things you should be doing are going undone and it is all your fault. You know you look lazy, crazy, and useless to the people around you but you have learned to just accept this label. It’s not fair, but life isn’t fair. This is a saying I have said to my kids more times than I can count and it has come back to bite me tenfold. – “Life’s not fair.” “The only fair you are going to find in life comes to town once a year.” “You buy your tickets and you ride your rides and that’s all the fair you get.” I don’t even get that. I can’t walk around a fair. I struggle to walk around the grocery store.

 

chronic-illness-memesMy 16-year-old son does all of my grocery shopping. I haven’t been to Walmart in months. I am so grateful for him doing this task for me and he will never know just how much. I think about how quickly they go from 16-year-olds to adults living elsewhere and think that by then my house will be clean. By then I will be able to do my own shopping. And then reality hits. By then, I will probably be worse off than I am now and I won’t expect him to do my shopping anymore. By then, what the Hell will I do?

 

I think when you spend so much time accepting the things you can not do it causes you to put off even the things you can do. For instance, writing in this blog. I keep putting it off and I don’t have a reason why. If I’m being honest, writing here is comforting because I am hopeful that sharing my feelings causes someone out there who is having the same life struggles to feel less alone if they stumble across my blog. I am holding on to the fact that my inability to do what I want will somehow encourage others.

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For several months I have been trying to build a store in Shopify that piggybacks off of my blog. So far, it has only been a hobby which I am constantly trying to make profitable.  I have never sold a single thing but I am learning a great deal about what to do and what not to do as far as designing goes. If you have time, check it out HERE.

 

IMG_6395I know this has been a short post and the posts haven’t been happening a lot lately. I do hope to change that very soon. If you have time to leave me a comment, I really do enjoy hearing from others just like me. I hope you all have a Happy St. Patricks Day!

Nothing New to Report

I must admit, I have a fairly boring life. I haven’t blogged much because there just hasn’t been a whole lot of interesting stuff going on in my life. I’ve been adulting, which is boring. The part of adulting that sucks the worst for me is that I am adulting far beyond my age. I hurt from old Arthur like someone at least twice my age.

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Guess what. I wrote last year about our birth month. It is just around the corner again now. Only this time Brady will be 16 and all of my worries will multiply. It is so scary sending your teenaged son out into the world with his own set of car keys. Possibly, the scariest part of parenthood. Here’s their freedom, to some extent, will they make good decisions? Did you do your part for him to know and do better? How will this unfold? Not to mention the thought of your baby flipped over somewhere on the side of the road because he hasn’t answered the phone.

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We’ve all done it. We’ve all came tenfold on the annoying things our parents used to say to us. Just last night I uttered the words “if you lock that door again, I’m going to take it off the hinges.” “What if the house caught on fire?” I internally giggle because I know I was told this more than once in my life. My father has some sort of fear of things going up in flames. Every house my sister or I have moved into has to pass the fire alarm inspection at his first visit. And if it doesn’t, you’re going to hear about it at least weekly until it is ratified.

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I don’t know if it is just my body, but you would think cold weather would be much harsher on an RA, MCTD, problem-ridden body.¬† I hurt far worse during the summertime.¬† I’m not sure if it is the rain, the heat, the humidity, or a combination of them all. I just know that it isn’t fun. And I am not able to go do all of the fun summertime things because the sun is NOT my friend.

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I think I have always held a deep hatred for heat. I can put on more clothes to keep warm in the winter than I can take off to keep cool in the summer. My body sure tries to take things off though. I melt. I sweat, I stink, and most of all, I’m miserable.

 

I am hopeful that I will start blogging more. I can’t make any promises though. I just don’t have a whole lot new and interesting going on and unlike most people, I am hibernating for the summer. I am binge watching whatever I can find. I am working as much as I can. I am adulting. Are we having fun yet?

Saying Goodbye

thThe past few weeks have been an emotional roller coaster. It started with Brady getting the flu, strain A to be exact. My boy was sick. He told me it was the sickest he’s ever been. Coming from him, that is a large statement.Flu-Season

He’s been in and out of hospitals his entire life with his asthma. He’s encountered many different types of sick.

We Lysol’d and Lysol’d every nook and cranny but I still fell ill about the time he became well. Not long after that, Bryant joined the “down for the count” club. Bryant was followed by Christian, who was followed by Haven.

I believe we finally got rid of the flu, but not without a loss. You see, in one of my sickest points Piper (see My Best Friends) was begging to go outside. When Piper begs she is very mouthy about it. In fact, I don’t think I have ever owned a dog that talked to me like she does. So I let her out and returned to bed where I then fell asleep. Forgetting Piper was out, she ran off.

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Piper

I awoke to a phone call from a neighbor asking if that was Piper on the side of the road down from my house. My heart stopped for a minute. I remembered Piper wasn’t inside. I instructed Christian to go down the road and see if it was Piper. Sure enough, my girl had met her demise. Her lifeless body lie dead on the side of the road. My best friend. I let her down.¬†wonceinalifetimedog

No words can explain the somber of losing a dog. It is so hard. It affects everyone in the house, including my other two best friends who still haven’t figured out where Piper has gone. They only know that their Mom is sad and their friend is absent.

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Sometimes you get on a roll in life. Be it a good run of bad luck, or good. I seem to have been on the later of the two. Not to be outdone, Brady’s great grandaddy passed away last week. A mere few days after the loss of Piper, we lost a wonderful, influential man from our lives.

Grandaddy (we dropped the great because it’s easier that way) and Brady had a special bond like no other. I’m not a grandparent yet, and I hope it is a LONG time before I am, but I do know that whether they want to admit it or not, grandparents have their favorites. Brady was his. No doubt about it. He talked to grandaddy on the phone more than anyone else in his life. Almost daily. When school events didn’t get in the way he spent nearly every weekend with Grandaddy. They always had some chore that needed to be done, and I think Brady found it fun to play around the farm with Grandaddy.

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Charles, Brady’s great grandaddy, was Brady’s dad’s grandaddy. So you would think that because he and I are no longer together, his Grandaddy and I had become distant. Not the case here. The man was so loving and so great with Brady. Until this year, you could count the number of sporting events he had missed of Brady’s on one hand. Rain or shine, he was there to see his boy.

What the worst part of this is, Brady was sick with the flu for a little over a week and couldn’t go see him and risk giving it to him. When he got over the flu he had several basketball games. His grandmamma called two nights before his passing and asked if I could get Brady to call her. She said Grandaddy was asking to see Brady. The plan was that the next day she would come get him and take him to the nursing home to see him.

The time came for Brady to leave and he got a call from his Grandmomma. The doctor wanted to speak to the family, the trip to see him would have to be postponed another day. It was that day that Great Grandaddy was called up. Brady never got to tell him goodbye.

I checked him out of school and had to deliver the bad news. My strong boy didn’t cry. His face was red and the tears filled his eyes, but he didn’t cry. I told him, “son, I know you are upset, and that’s okay, you should be.” “But son, you don’t have to be ashamed to cry, especially not in front of me,” I told him that holding things in would cause you to go crazy.

And so the tears fell and fell. We got home and he went to his room and locked the door and sobbed. His grandmamma came to get him. He stayed there at his great grandaddy’s until yesterday.

The funeral was Saturday and of course, I went. Thank goodness the flu was about a day behind me and I was able to go. Because Brady needed me. He was not okay. It is a strange feeling to be in a church full of the family of my ex but their family is so loving and so accepting of all. I received many hugs and “so good to see you’s”.

The time came to close the casket and begin the Funeral part of the funeral. Brady nearly had to be pried away from his grandaddy’s casket. He didn’t want to say goodbye. My heart broke because there was nothing I could do to make it better. Nothing at all. And I have never seen my boy this upset. Never! A mom wants nothing but happiness for her kids. She wants nothing more than to make things better, but this is an instance where that cannot be done.

Great-grandaddy taught my son so much about life and how to be a man. And he did a dang good job of it. The world lost a truly wonderful man. We will all miss him dearly. But I am so glad Brady has so many great memories and lessons learned from him that he can carry through the rest of his life. I am blessed to have had such a wonderful man be a part of my son’s life for so long. If I could tell him how thankful I am for him and all that he did, I would.

 

One thingtumblr_m8ex8s1RSk1r7zepzo1_400 I wish I could say goodbye to is all of this pain I am feeling constantly. It is getting old. I wish I could have just one good day. It doesn’t seem like an attainable wish.

Bitter Cold Break

I have been on a small hiatus from writing on the blog lately.  I have fussed about this before, but maybe it bears mentioning again.

 

My insurance policy I had last year decided they no longer would cover my Methotrexate in November. I was also still dealing with the broken foot which is, quite possibly, the most painful injury I have endured in my life. youknow19

 

I have also complained a great deal about the side effects of Methotrexate and I promise you now, I will NEVER do that again. You see, you don’t realize the extent that a medication is helping until you abruptly quit taking it and your disease kicks into high-gear. No, Methotrexate is certainly not a walk in the park, but MCTD and RA mixed with mending bones and the wonderful winter we’re having this year are far worse than a Methotrexate hang-over (for lack of a better word).

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In Alabama, where I live, it is extremely rare to see snow. We have no idea how to handle snow here and our entire state shuts down at the mention of it. So for it to have snowed twice in one year is kind of a big deal. Years ago, I would’ve loved it. It’s exciting to experience snow when you aren’t accustomed to it. But when your bones ache all over on good days and alarmingly alert you of unstable air outside on not-so-good days, they darn near give up on snow days.

 

Another problem which I still haven’t found a resolution to is cold feet. I have written about this before. I am so determined to find a good solution to this problem but I am starting to feel deFEETed. I know that isn’t how you spell that.

 

My feet will be cold for so long that they pure hurt. And then when I have finally found the perfect combination of cover, sock, heating pad, and position to warm them they quickly go from Jack Frost to Satan’s den. There is no in between.

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The morning of the last snow day we had I awoke thinking I may be running a fever. I thought this because I couldn’t get warm. I couldn’t get warm because our heater decided to take the day off. Not only was it not heating, it was blowing cold air. I think it took the better part of the week for my body to warm up from that problem. Luckily, my husband is friends with the local AC/Heater repair guy.

 

I couldn’t¬†tell you the technical name for the thing-a-ma-do-hicky¬†that is broken on our heater, but I can tell you that it works intermittently now and that if I want to fix this it’ll cost around $500.00. Considering the fact that in Alabama we typically need heat at night and air conditioning during the day and that it still works some of the time, I can not justify that expense right now. If it ain’t broke (completely), it doesn’t need fixin’ right?

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With all of this being said, I have had a lot more going on this winter which I will save for another post since they have been few and far between.

 

My son has the flu so I am off to spray some more Lysol. Ya’ll¬†pray that we keep it from spreading to the rest of the family and pray that he gets well soon.¬† He says he’s¬†never been this sick in his life and coming from him, that speaks volumes!

 

Writer’s Block

I will make this short and sweet. I haven’t blogged much this month. It has been an eventful month, but not much to talk about.

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You may have noticed my last blog was a rant. I’ll be the first to say that it wasn’t even a grammatically correct rant. I was pissed. I still am, but I have calmed down just a hair. I’m not sure if it is because time has passed since I wrote that post or if it is because my GP felt the need to up my Zoloft to 100mg a day. Whichever the case, I’m tired of fussing with it. It does absolutely no good.

It is starting to look like that is all I do when I blog. I fuss, I post about pain, I post about being sad, mad, hurt, etc. I know that gets old for my readers to read over and over and over again.

 

I’m very sorry if my meltdowns, rants, wines, and for the most part, saying what I wanna say out loud but cant offends you. I’m sorry if it is hard to read. You should try living it. I’m just saying.

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I should add in here that another reason, aside from my broken foot, football season, and dealing with doctors and insurance and mixed connective tissue disease, is because it’s also TV SEASON!!! All kinds of new, GOOD, shows are coming on. Along with the returning greats that we spend the offseason wishing was on.

 

Here is a list of my all-time favorites:

 

Grey’s Anatomy

The Walking Dead

The Talking Dead

This is Us

Law & Order SVU

Chicago Fire

Chicago PD

Once Upon a Time

Vikings — which I hope is soon coming on even though¬†with Ragnar gone it will never be the same

 

 

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But let me let you in on a secret show I found which I absolutely LOVE!33497f8ffe9b554ee4ae1d693b4b15ee--season--fangirl

 

It’s called Offspring. It is about a woman who is an obstetrician in Australia. She has a sister and a brother, both trying to find their way in the world since they didn’t do the college thing,¬† Nina is her name, She is trying to find love. She is married to a man who is creepily obsessed with her, And then her Mom’s house is a madhouse at all times. Her father knocked up a nurse that works with Nina and her parents are still married, but it appears to be an off again, on again sort of thing.

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I would love to tell you it is a nice family oriented show like Parenthood or This is Us because it is. BUT (and this is a huge but) there are some very adult words and a good bit of sex that goes on. It is a great show to watch when your kids are away or paying no good attention to what you are watching. You can thank me later if you try to watch this show, I would have to say it took me the entire first season to decide if this was my new go to show. And by the end of season 1, you are hooked. Hooked to the point that you are dedicated ONLY to watching all 7 seasons. I finished them in about a week.  And now I want more, and I want it NOW!b41252aed7d3ed8084361b7583fec174

 

My Ambien is finally starting to kick in and I have spent much of the end of this post to stop and backspace my typo’s out. So what I will do here is save what I have written, add photos tomorrow. and proofread it before I post. I do this often so that I can make sure I make sense anymore.

Footloose, NOT Fancy or Free

I haven’t been able to do a blog lately. This week or two has been plum pitiful. On all fronts. ¬†IMG_4311.JPG
I think the last time I wrote I was writing about bleacher butt and I told ya’ll about how my son tore his UCL. Well, he has been doing therapy and is getting much much better. The first week of therapy was last week.
Last week started off with the entire Hallman clan coming down with what I thought was a stomach virus on Monday. By Tuesday everyone else felt okay and Bryant, my youngest, was worse. He started running a fever that would not respond to Tylenol or ibuprofen. So off to the ER we go with him. They thought it may be strep, but he didn’t test positive, so that was ruled out. So we get a breathing treatment in the hospital along with antibiotics and steroids. We get sent home with the same. He is supposed to be able to return to school on Thursday but he wasn’t because he hadn’t yet been 24 hours without a fever.
So, it’s Thursday and things are looking up because he is back to his somewhat normal self and plans to go to school tomorrow. Over the course of everyone being sick and me off and on convincing myself that I too am sick I have lost a considerable amount of much needed hours of work. Not only is it much needed because I am getting behind on my daily basic job duties but because I am also missing out on hours I need to be paid.

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As you know I work from home. I also have chronic pain that I deal with all of the time. This week was no different than any other week when it comes to pain level. I had a makeshift desk set up in the recliner in my room which I would sit in with my little lap desk and peck away on this laptop until I decided it was time for a break. Well, for whatever reason, that day I felt like setting this lap desk on the floor in front of my bed and it would be fine. For most people, it would have. IMG_4348
For my extremely forgetful, excessively clumsy self, it was a recipe for destruction. Sometime after Greys Anatomy was over I decided to hop out of bed and high tale it over towards the closet. To this day, I have no idea what I was going to look for. Not one. All I do know is that after my left foot hit that lap desk and bent in places feet are not meant to bend I blacked out and when I came to I hurt all over. Mostly my left foot which is already riddled with rheumatoid arthritis and bunions and traits that make me look like I am walking on Leggo’s for the first few steps that I go anywhere after sitting for a while.
This same left foot has made its debut on my blog before for its ability to turn green when it isn’t the perfect degree of not too hot, not too cold. This foot has now taken on a different color. Black, blue, and a little red, oh, and A LOT swollen.IMG_4347

I can’t imagine what my whole falling incident looked like to my husband who was sitting on the bed at the time of tumble, but I guess it was a laughable moment for him. I will laugh about that now, but at the time, it was a lot of things but funny wasn’t one of them. ¬†If I could’ve gotten up, I would’ve knocked him out.
But see, it’s hard to get up when A) Your left foot doesn’t work at all, B) Your three loving (obviously more than my husband at this time) dogs are worried about you and they are all crowding around you trying to help. C) The throbbing and constant pain you are in combined with the disgust you have for yourself for being clumsy enough to allow this to happen causes you to hyperventilate. Full on, sweat, can’t breathe, can’t-do` anything! I was finally able to get myself up from the floor with the help of my husband and lie down on the bed while he took a shower and I tried to calm myself down.
It was at this time that I knew that the only thing that would help me was a prescription drug of some sort to take the edge off of the pain. So back to the ER goes another Hallman.

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After a shot of Toradol I was sent to x-ray and when I told the ER doc that I have MCTD and RA with the worst of the RA being in my feet he came back into the room and gave me a shot of Morphine. He tells me that he believes I have a Lisfranc tear and I need to see ortho first thing in the morning.
So by the time I get home and bathe and try to find any sort of comfortable position to sleep I have almost been awake now long enough to watch the sun come up. Finally, I slept. I got up Friday and got into the ortho who told me that I have two places that are clean breaks and another that is cracked. He’s worried about my Lisfranc and possibly a ligament in my ankle but can’t even attempt to check on them until my bones have somewhat healed.

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Each passing day deems my foot blacker and blacker and my body wore and worse.

There is NO relief to be found. There is no comfortable position. I am mad, sad, aggravated that along with all the other BS I go through daily with regards to pain, I still needed to bust my butt and add to that pain with some more pain.

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