Nothing New to Report

I must admit, I have a fairly boring life. I haven’t blogged much because there just hasn’t been a whole lot of interesting stuff going on in my life. I’ve been adulting, which is boring. The part of adulting that sucks the worst for me is that I am adulting far beyond my age. I hurt from old Arthur like someone at least twice my age.

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Guess what. I wrote last year about our birth month. It is just around the corner again now. Only this time Brady will be 16 and all of my worries will multiply. It is so scary sending your teenaged son out into the world with his own set of car keys. Possibly, the scariest part of parenthood. Here’s their freedom, to some extent, will they make good decisions? Did you do your part for him to know and do better? How will this unfold? Not to mention the thought of your baby flipped over somewhere on the side of the road because he hasn’t answered the phone.

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We’ve all done it. We’ve all came tenfold on the annoying things our parents used to say to us. Just last night I uttered the words “if you lock that door again, I’m going to take it off the hinges.” “What if the house caught on fire?” I internally giggle because I know I was told this more than once in my life. My father has some sort of fear of things going up in flames. Every house my sister or I have moved into has to pass the fire alarm inspection at his first visit. And if it doesn’t, you’re going to hear about it at least weekly until it is ratified.

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I don’t know if it is just my body, but you would think cold weather would be much harsher on an RA, MCTD, problem-ridden body.  I hurt far worse during the summertime.  I’m not sure if it is the rain, the heat, the humidity, or a combination of them all. I just know that it isn’t fun. And I am not able to go do all of the fun summertime things because the sun is NOT my friend.

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I think I have always held a deep hatred for heat. I can put on more clothes to keep warm in the winter than I can take off to keep cool in the summer. My body sure tries to take things off though. I melt. I sweat, I stink, and most of all, I’m miserable.

 

I am hopeful that I will start blogging more. I can’t make any promises though. I just don’t have a whole lot new and interesting going on and unlike most people, I am hibernating for the summer. I am binge watching whatever I can find. I am working as much as I can. I am adulting. Are we having fun yet?

Thoughts on Methotrexate

I stated that in the end of May I went back to my rheumatologist. I forgot to mention the new game plan. Imagine that. My ADD butt forgetting to post an update.

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We came to the conclusion that the root cause of my rashes was the Plaquenil. She also said that many of my painful areas are trigger areas for fibromyalgia. So here’s what we did as far as meds go:

Stop taking Plaquenil immediately and give it three weeks to allow it to get out of my system. After that period I will start taking Methotrexate.

Stop taking Gabapentin and Flexaril and replace it with 75mg of Lyrica twice a day.

My three weeks will be up Monday. From what I have read, the Methotrexate doesn’t look like a whole lot of fun. I’m interested in hearing from any fellow spoonies who take it and see how it has helped you and what drawbacks you have. Lyrica didn’t have much if any, effect on me. (As usual, my Ambien is beginning to have one on me as I type)

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To make matters worse, I’ve apparently, unbeknownst to me, moved to the Amazon rain Forrest. It has been raining for nearly 4 months now. Rainy days get average people down, but they take away spoons from people like me. It’s been rough. I have already been complaining about the rain and then Cindy brews up and brings in more rain than I have seen in a long time, if not ever.

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Back to medicines, what do you do to get the cost of your medications which do not come in generic form down? I need advice so that I don’t have to take out a 2nd mortgage or anything next time I visit the pharmacy. I hope you all have a dry and great weekend.

 

Goodnight!